One out of every 287 babies in Shelby County is born with sickle cell disease. That’s higher than the national rate of one of every 350 babies.
The report said many people with sickle cell anemia don’t have access to providers with expertise in treating the disease. Many also report feeling stigmatized and having their symptoms dismissed when they do receive care.
Sickle cell disease (SCD, aka sickle cell anemia) may technically be a rare disease in the U.S., but hardly in the Black community.